Today was my hearing for my disability! Well, I wasn't all that excited because I've had a sinus infection/headcold that's left me bed bound for the last 4 days. Luckily, I've managed to be a little less sick today so that this thing could get done.
I basically met with my lawyer about 10 minutes before. He went over some last minute things and then we were in the room with the judge. It's a small setting and nothing crazy. Basically it's the judge, two other people, and the lawyer with you.
The judge asks you a few questions regarding your health, day to day activities, work, and so on. For me it took about an hour, but from what my lawyer said, it could take maybe two depending on the records the judge has and what they need to know to decide on the case.
It was a little nerve racking at first, but that went away once we were getting in to questions. Now that the hearing is done, there is a waiting period. It's anywhere from 4 to 8 weeks before I'll hear back on a decision.
Hopefully, I'll hear back soon and win my case!
Wish me luck!
Showing posts with label SSD. Show all posts
Showing posts with label SSD. Show all posts
Tuesday, November 10, 2015
Friday, November 6, 2015
POTS Information: What to bring to the hospital...
Recently, I saw a pin on Pinterest on What to Bring to the Hospital (expecting mothers style). I figured, Spoonies stay in the hospital for a long time sometimes and we should have a list for our family or caretaker to have!
1. Toothbrush and paste
2. Face wash
3. Lotion
These things can make a HUGE difference in how we feel sitting in bed all day!
4. Colouring books and pencils, Art Supplies in general
5. Laptop or Tablet, phone and chargers
6. Books
7. Deck of cards
Things to do when you get bored of nurses, tests, and daytime TV.
8. Medicine from home! Sometimes the hospital pharmacy doesn't have everything you take! Ask the doctor if you can take them too!
9. Change of clothes for leaving
10. Extra underwear to feel clean in
11. Pads or tampons....just in case! I know I had to go off my bc and then I had my period with no pads.
12. Pair of Socks
13. Hair ties or head band
Things for cleanliness!
Finally you may need a neck pillow or a blanket from home for comfort. Or even a teddy bear! I know I have my hospital buddy!
1. Toothbrush and paste
2. Face wash
3. Lotion
These things can make a HUGE difference in how we feel sitting in bed all day!
4. Colouring books and pencils, Art Supplies in general
5. Laptop or Tablet, phone and chargers
6. Books
7. Deck of cards
Things to do when you get bored of nurses, tests, and daytime TV.
8. Medicine from home! Sometimes the hospital pharmacy doesn't have everything you take! Ask the doctor if you can take them too!
9. Change of clothes for leaving
10. Extra underwear to feel clean in
11. Pads or tampons....just in case! I know I had to go off my bc and then I had my period with no pads.
12. Pair of Socks
13. Hair ties or head band
Things for cleanliness!
Finally you may need a neck pillow or a blanket from home for comfort. Or even a teddy bear! I know I have my hospital buddy!
Monday, June 29, 2015
Fighting for Disability Part 2
For the beginning of July, my lawyer is starting the next step in the process. Gathering medical records. He sent out a letter to me to sign off on collecting records from all my doctors. Which, I feel bad for him, cause there is a LOT!
But whilst this is all going on, my new cardiologist decided to throw in something new to the diagnosis. JOY --------------- not really. He's not convinced I have POTS. Wonderful, just want I needed. But he is convinced I have Nero-Cardiogenic Syncope. It's under the same umbrella as Dysautonomia...just like POTS is, but it's sort of a pain that I've been told and treated for POTS for 3 years by other doctors and now this guy is going to be a pain a want to change things around. I'm only hoping it doesn't mess of my Disability process. I'm considering a second or third or fourth opinion at this point in my life.
At this point, YES it's a form of Dysautonomia. YES, I think it's POTS considering everything I've been through. But I guess the more doctors you see the more opinions you're going to have.
HELP!
But whilst this is all going on, my new cardiologist decided to throw in something new to the diagnosis. JOY --------------- not really. He's not convinced I have POTS. Wonderful, just want I needed. But he is convinced I have Nero-Cardiogenic Syncope. It's under the same umbrella as Dysautonomia...just like POTS is, but it's sort of a pain that I've been told and treated for POTS for 3 years by other doctors and now this guy is going to be a pain a want to change things around. I'm only hoping it doesn't mess of my Disability process. I'm considering a second or third or fourth opinion at this point in my life.
HELP!
Sunday, May 3, 2015
Fighting for Disability aka SSD/SSI
P.O.T.S. is one of those conditions that is hard to diagnosis much less show the government that it's a real condition in which you need help to live your life. I know few who with P.O.T.S. that have been granted SSD and for them it's been years of denial and appeals until they were even considered.
As I am currently going through this process myself, I hope to help others in their process as well by providing a timeline and my course of actions throughout my case.
In spring of 2013, my body mimicked a seizure and passed out, again (not the seizure just passing out). Prior to this episode, I have passed out many times before starting at the age of 14. I never had a proper diagnose until this episode in 2013. This episode was much grander than the previous episodes and proposed new research and symptoms such as the seizure.
After my diagnosis, my current cardiologist in 2013 recommended me starting applying for SSD because with this condition I would never really be back to full speed. I'll never be able to work a full time again and would have a hard time keeping up with a part time job. Which has been something to work with and readjust to on it's own. But that leads to fiances. How do you support yourself on a barely part time job with a health condition that is hard to manage?
Craziness, right?
- -
In late 2013 I filed my application, was denied and I appealed in 2014.
--
This is the part of the process where most of us need help. After appealing and even before the application, getting a lawyer or attorney is advisable. They are going to help you in the appeal process and guide you through all the legal stuff.
The next step is gathering information. And by information I mean EVERYTHING!
Medical Records, old and most updated and be sure to keep them updated
Tax Papers
Financial Records
Bills you pay
Outstanding bills
Employment papers
Unemployment papers
Etc.
It's good to make a binder of some sort or folder to keep at least one copy of everything in! Once it's prepared then you can take it everywhere you need in one piece! And people can make copies of what they need if needed. Another thing I recommend doing to make it easier on everyone involved, is make a timeline of your diagnosis and things effected by it. Like if you had to move or quit a job....etc. It helps you when brain fog takes effect and the person trying to understand the situation.
Lastly, keep talking to your doctors and specialists. Make sure they are on the same page as you.
For now, that's all I can recommend because it's the part of the process I am at. I plan to keep everyone up to date on the process from here on out. As of now I am seeing doctors and specialists to update records and or tests needed.
~
Disclaimer: I'm not a lawyer or doctor by any means and this is just my experience. Take from it what you like!
Find more knowledge on applying for SSD and attorneys by state here!
http://www.disabilitysecrets.com/assistance.html
As I am currently going through this process myself, I hope to help others in their process as well by providing a timeline and my course of actions throughout my case.
In spring of 2013, my body mimicked a seizure and passed out, again (not the seizure just passing out). Prior to this episode, I have passed out many times before starting at the age of 14. I never had a proper diagnose until this episode in 2013. This episode was much grander than the previous episodes and proposed new research and symptoms such as the seizure.
After my diagnosis, my current cardiologist in 2013 recommended me starting applying for SSD because with this condition I would never really be back to full speed. I'll never be able to work a full time again and would have a hard time keeping up with a part time job. Which has been something to work with and readjust to on it's own. But that leads to fiances. How do you support yourself on a barely part time job with a health condition that is hard to manage?
Craziness, right?
- -
In late 2013 I filed my application, was denied and I appealed in 2014.
--
This is the part of the process where most of us need help. After appealing and even before the application, getting a lawyer or attorney is advisable. They are going to help you in the appeal process and guide you through all the legal stuff.
The next step is gathering information. And by information I mean EVERYTHING!
Medical Records, old and most updated and be sure to keep them updated
Tax Papers
Financial Records
Bills you pay
Outstanding bills
Employment papers
Unemployment papers
Etc.
It's good to make a binder of some sort or folder to keep at least one copy of everything in! Once it's prepared then you can take it everywhere you need in one piece! And people can make copies of what they need if needed. Another thing I recommend doing to make it easier on everyone involved, is make a timeline of your diagnosis and things effected by it. Like if you had to move or quit a job....etc. It helps you when brain fog takes effect and the person trying to understand the situation.
Lastly, keep talking to your doctors and specialists. Make sure they are on the same page as you.
For now, that's all I can recommend because it's the part of the process I am at. I plan to keep everyone up to date on the process from here on out. As of now I am seeing doctors and specialists to update records and or tests needed.
~
Disclaimer: I'm not a lawyer or doctor by any means and this is just my experience. Take from it what you like!
http://www.disabilitysecrets.com/assistance.html
Subscribe to:
Posts (Atom)