Showing posts with label GI issues. Show all posts
Showing posts with label GI issues. Show all posts

Tuesday, May 10, 2016

Self Love Improvements

Since starting the new year, I've been working on my self love and self care; physically and mentally. I started off going to the gym with my boyfriend and working on my endurance and muscle mass. After having POTS and my other chronic illnesses, my muscles have deteriorated over time of diagnosis, treatments, and coping. The gym really helped me feel good again, regardless of the pain that came with it. I had a few minor POTS episodes but was able to catch them before I passed out by laying on the floor with my legs up.

However, since my boyfriend has developed some sort of unknown health condition of his own, we've stopped going together cause he kept an eye on me at the gym. So, I picked up aqua therapy at Allied Services. I have a therapist that watches me as I exercise in the pool. It feels amazing being in 90 degree water, the only downside is POTS. It helps with the fibro pain, not so much with conditioning and building endurance. And the heat of the pool sometimes makes it hard to do the exercises or stay in the pool for too long. As of now, I keep it to a minimum, but would like to get back to the gym because I feel like that has done the most help.

And as a side note, being on my gluten free diet for about 6 months now as improved my stomach and my POTS episodes. It's also helped the amount of tension headaches I have on a weekly basis. I know when I eat too much gluten and cheat that I'll usually have a headache.

Finally, my mental health has improved greatly since 6 months ago and to be frank, probably the best it's been in years. I've have a proper diagnosis and proper treatment with an amazing therapist. We've been working on a lot of issues and on myself as a person. It also helps to have an amazing boyfriend who's been supportive on my mental journey as well. He's put up with the random breakdowns and irrational thoughts I have with MDD. (Major Depressive Disorder)

Below I have a few links to things that have helped me on my mental health journey and self love. They have been a blessing to me!

Building Self Esteem

Overcoming Guilt and Self Punishment

Practicing Self Love

More Self Love

Self love, Self love, Self love


Try this challenge! 


And make a list of things that make you happy! 






Thursday, February 18, 2016

Growing Stronger

Since 2011, I've been up and down on the weight scale and muscle mass decline; due to a series of things, such as not knowing I was gluten intolerant and having my seizure scare (which turned out to be POTS). I could only keep so much weight on and felt exhausted and like crap all the time.


I basically looked like skin and bone and my hair loss was getting worse as well. You can see above how small I was.  And my boobs were none existent. 





BUT BEHOLD! 



I'm getting back to a normal weight and I'm gaining muscle! Look at those abs beginning to form! eek! 

I haven't felt this great in years and I'm glad to be getting back to better health! 





Monday, February 15, 2016

Where am I and what am I doing?

I'm back in PA and working as a screen printer still. It's nice to back in familiar places and around people of comfort. Moving around is always stressful and exhausting. It's rather hard to live in an apartment still considering my conditions and being able to work. I was hoping by this time I would hear back from disability but I haven't. It's a horrible and long process. I can't say how tired I am of this whole thing. I wish it could be sorted and finished.

However, being back in PA and focusing on myself. I've been able to keep my POTS under control and start becoming strong again. Also thanks to figuring out my gluten intolerance, I've been feeling better all over. I've been able to do more and eat without getting sick. It's improved my way of life. I've started going to the gym as well to work on my legs and endurance like the cardiologist told me. It's going to help me get stronger and be able to do more without getting so tired quickly. It'll also help me from passing out so easily. Because it's pumping my blood upward. I started at the end of December working out and I've definitely noticed a difference so far! I've got muscle building again! It also helps me with my job and standing for longer periods of time. The only downside is my Fibromyaliga acting up and hating me for working out. But it gets better as I go. I'm just sore all the time.

I've also picked up therapy again and have the best therapist I've ever had and it's been lovely!

Monday, January 11, 2016

Current Diet for Weird Body

Well since my body has multiple issues a weird diet is put into play. I'm gluten intolerant*, have Fibromylgia, Hypothyroidism, and POTS. All of which affect the stomach and digestive system. 

The Fibro, Thyroid, and POTS generally slows down the process of digesting.....while the gluten intolerance causes pain when I eat gluten substances or things that cross with it. 


Foods I Avoid: 
Red Meats
Tough/gassy vegetables and corn 
Fruits with skins that can't be removed
Peanuts
Gluten --- limitations
Dairy  ---limitations
Eggs 


So what does that leave me? A lot actually. I do eat gluten free pasta, bread products, baked goods, candy, and dressing/sauces. I love tomatoes, carrots, green beans, potatoes, rice ......chicken and turkey....even pork. I love pears, berries, lactose free diary products. It's really all about discovering new foods and new ways of eating them.



*Gluten Intolerant: Isn't like Celiac's Disease. I'm intolerant. I can handle small amounts of gluten, once I get to a certain point, then I have reactions to the gluten. Which happens pretty quickly right now because I'm not healed yet from my last gluten-phase. It's just like being lactose intolerant.....too much dairy = angry tummy and lots of bathroom trips

Tuesday, December 22, 2015

Life Update: Where has my life been?

I don't even know myself. I've got my GI test results back. Gluten intolerance...not Gastroparesis.
Which is good I guess, I have to just change up my diet rather than go through the craziness of finding medicine or more procedures. Other than that, I have a lovely colon according to the doctor.


But the rest of my life, is just falling apart. 

Saturday, November 21, 2015

Prep, Endo and Colonoscopy with POTS

The past few days I've been preparing to have some GI procedures done (Finally) to figure out what's up with my stomach these last couple of years. The prep was gross, but the procedure went fine. It's a lot of drinking of prep and fluids. But you do get to sleep for awhile under anesthesia.

Anesthesia was the only thing I was worried about with POTS. Considering my body likes to freak out randomly. I talked to the anesthesiologist and he actually knew about POTS! I was relieved. I did print out a sheet of info for him from DINET. It has a blurb about patients being on anesthesia and what they may need. Just in case. 

Link here: 


Basically, they monitored me more than normal, put a heart monitor on me, and then gave me a bag of fluids afterwards to pep up my bp again. Then the rest of my day I spent sleeping and drinking fluids to replenish. 

I'm very proud of my body and it's ability to remain normal throughout this! 

Wednesday, January 21, 2015

Body Changes




When I'm in my bad state and having flare after flare, my body begins to deteriorate in some way. I'm a mere 100 lbs, size 4 in pants and down to a 34B in bras. 

But when I am healthy, I am a blooming 130 lbs, size 12 in pants and a 38D in bras. And it feels wonderful to have my curves back. It feels healthy when I have my weight on me.

The only bad thing about weight change is that it's constant in chronic illness. I never really look the same year after year and people react to my body in negative and positive ways. It took awhile to feel good about myself and get use to my body changing. 

 And needing to have a box for "normal" clothes and "sick" clothes (that's annoying).   

After I started getting use to my body changing, I got use to knowing how to take care of it in each state. Keeping my body healthy is the goal these days. Whether I'm skin and bone or blooming in curves. I know it's going to change as I get older and as my body reacts to my illness. 

Here's to staying healthy in the best way possible and always being grateful for what I do have. 










Friday, January 9, 2015

Surviving a flare

You're sitting on the couch and suddenly your stomach twists and turns inside out and you're ready to die right there.

You're not sure if you're gonna barf or have to run to the bathroom. But most times it involves needing to be in that space for a long time.

In my years of dying in pain and having flares, I've developed some tactics on dealing with them. I'm not always successful, but sometimes I'm lucky. For starters, I always try to bring something with me, usually my phone, but a book works too. It's a distraction tool and well my phone doubles as a safety call. (usually in the middle of the night when people are sleeping and can't hear me yell for help if I need it)

But I start out with saying my abc's in my head or whispering them to myself. It's like a mantra and centers me away from the pain, when it's starting to feel more bearable, I play the games on my phone or look at my apps. This is usually a 20 min or 40 min process of defeat or winning at the pain. And it ends in me either laying on the floor of the bathroom or next to a bucket of sorts.

All in all, it's not going to work for everyone, but it's something to start with and you can develop your own process of working through a flare. Other times, yeah, you're going to be crying on the bathroom floor in pain and hating every minute of it. But you can try and make it bearable and focus that energy on other things.


When it's all said and done....DRINK YOUR FLUIDS! Nothing worse than not re-hydrating after a flare.











This post was sponsored by: my recent flares of hate.




Thursday, November 20, 2014

POTS Information Post: What's in my nightstand?


Err, this mess. Is my nightstand. But let's de-mess it for a bit. 




Tylenol and Super Papaya Enzymes ....great for when my stomach is going crazy 




Allergy relief and my faithful monitor! 




The medicine from my last post.





And hair-ties and earplugs in arms reach! 


Monday, November 10, 2014

POTS Information Post: Daily Medicine


Hello people of the internet, I'm doing POTS information posts this month for those just starting out in the community or those who need some ideas on what to take. 

*Disclaimer: I'm not a doctor nor a specialist, just a lady with POTS and this is what I take to help me get by on a daily basis. Please talk to your doctor first about taking any medication! 


Morning medicines:
1 Fludrocortisone 0.1mg -Heart Medication
1 Xyzal 5mg - Allergy Medication
1 Synthriod 25 mcg - Thyroid Medication
1 Kyo.Dophilus Probiotics with Enzyemes -for GI issues
1 Cymbalta 30mg - for Fibromyalgia 



Nightly medicine:
1 Biotin 2500mcg - Hair and Nail Growth
1 Folic Acid 400mcg - to build immune system
1 Singulair 10mg - Mast Cellular Disorder ??
1 Vitamin D-3 2000IU - to build immune system and calcium 


Plus: 
Seasonique 0.15-0.03-0.01mg - birth control so I don't die so much during periods and flare up on POTS
20mEq Potassium as needed for hydration

Monday, October 20, 2014

When Your IBS Flares UP

Or you find out that after 4 years of suffering, you COULD be suffering from Gastroparesis.
"What?" You say?
Exactly. According to the MayoClinic of holiness, Gastroparesis is a condition in which the muscles in your stomach don't function normally.
Ordinarily, strong muscular contractions propel food through your digestive tract. But in gastroparesis, the muscles in the wall of your stomach work poorly or not at all. This prevents your stomach from emptying properly. Gastroparesis can interfere with digestion, cause nausea and vomiting, and cause problems with blood sugar levels and nutrition.
There is no cure for gastroparesis. Making changes to your diet may help you cope with gastroparesis signs and symptoms, but that's not always enough. Gastroparesis medications may offer some relief, but some can cause serious side effects.
Hmmm, greatttttttt.
~
So, what have I done to change my diet and try and heal my stomach? After much researching and using my handy dandy Pinterest, here are some of the foods I'm eating and drinking and avoiding.
1. Vegetables: Some of the vegetables you can eat with gastroparesis include carrots, mushrooms, acorn squash, potatoes (no skin), spinach, beets, tomatoes (no skin), tomato puree, summer squash, strained tomato sauce. Always remove the skin and cook the vegetables well.
2. Fruits and juices: Apple juice, cranberry juice, pineapple juice, grape juice, prune juice, strained baby fruits, canned fruits without skins such as apple sauce, peaches and pears is safe for gastroparesis. Avoid raw, fresh skin on produce such as berries, oranges, plums and skin on apples.

3. Ginger: Ginger aids digestion and relieves nausea and vomiting. You can try drinking a cup of ginger tea about 30 minutes before meals to stimulate gastric juices or after meals to aid digestion. You can use ginger in soups, entrees, baking and marinades. Also you can make ginger syrup at home. It is a mixture of ginger extract and honey or hot water. Ginger is a great home remedy for gastroparesis and has a unique power of healing due to the high contents of volatile oils.
4. Grains: Another good food to eat with gastroparesis is low fiber foods. Low fiber foods and grains is best for gastroparesis. Some of the low fiber grains including white bread, white rice, pasta such as couscous, plain grits, plain oats, plain bagels, white grain waffles, plain roll, breadsicks, toast, cream of rice and cream of wheat.
5. Proteins: Red meat is hard to digest for people with gastroparesis. Instead, you can focus on lean meats such as skinless chicken and turkey, non breaded fish like scallops, tuna, oysters, eggs whites, tofu and dairy products. These are rich in protein that digest well with gastroparesis. Consume hot cereals with skim milk, soy or rice milk and liquid nutritional supplements.
Some of the fat free protein sources include egg beaters, egg whites, powdered egg whites, fat free milk, non fat dry milk powder, non fat cottage cheese, non fat yogurt, non fat cottage cheese, evaporated skim milk, fat free luncheon meat, high protein egg whites and high protein broth. 
6. Soups: You can make soups with fat freebroth, skim milk, fat free bouillon containing pasta or nooddles. Also you can add ground chicken meat, ground turkey meat, tomato puree and finely chopped and cooked vegetables such as carrots, mushrooms acorn squash.
7.Desserts: Custards and puddings made with skim milk, sherbet, low fat yogurt, vanilla wafers, marshmallows, popsicles, caramels and jelly. you can make shakes with liquid nutritional supplements such as nutra shake, ensure, boost, honey, non fat ice cream (no nuts), syrups, banana and vanilla carnation instant breakfast.
8. Others: Peanut butter 2 tbsp per day, ginger snaps, graham crackers, gatorade, ginger ale, crackers, saltines and pretzels.
It is best to avoid dried fruits, oranges, broccoli, berries, caffeine, popcorn, nuts, seeds and oatmeal. These foods are high in fiber and difficult to digest.
~
Though you should know, I am allergic to Nuts, EGGS, Garlic and Onions. Which doesn't help this whole diet thing.
~

Basic dietary guidelines for gastroparesis:
1.Eat 6 small meals instead of 3 big meals. It helps your stomach from getting full and reduce gastric pressure.
2. Avoid high fiber foods because the indigestible portion remain in the stomach for much longer periods and possibly form bezoars or hard calcifications of food that causes severe vomiting and nausea.Foods associated with bezoar formation include berries, apples, brussel sprouts, oranges, coconuts, corn, figs, green beans, legumes, potato peels, sauerkraut and tomato skins.
3. Limit caffeine and alcohol as they trigger symptoms of gastroparesis.
4. Drink plenty of water throughout the day.